Influencer Erin Oudshoorn’s 6-YO Daughter, Lulu Passed Away, She Was Diagnosed With Rare Epilepsy

Influencer, Erin Oudshoorn’s 6-year-old daughter, Lulu passed away. She took to her social media and announced the death of her daughter. For the unversed, Erin’s daughter, Lulu, was diagnosed with a rare epilepsy named West Syndrome. She was diagnosed first when she was 11 months old. On January 27, 2026, Erin took to her social media and revealed that her daughter passed away peacefully. Social media users offered condolences to the sweet soul. Erin took to her social media handles to document Lulu’s journey with the rare form of epilepsy.
Erin Oudhshoorn’s daughter, Lulu passed away at the age of 6
On her social media handle, Lulu’s mother, Edin Oudhshoorn, posted a photo of holding hands with her daughter and husband, along with an emotional caption. In the caption, she announced the death of Lulu while adding that she and her husband are utterly broken. She further mentioned that Lulu has passed away peacefully, surrounding her loved and close ones. The comment section got filled with heartbreaking comments from the followers who used to follow the little one and her journey with her health battle. The caption from Erin, wherein she announced Lulu’s death, could be read as:

“6 years, 3 months, 29 days. It is with the most painful, shattered heart to share that our darling Lulu passed away peacefully in our arms yesterday, surrounded and profoundly loved on by all of her extended family. Dave and I are just utterly broken. There simply aren’t enough words to express our agony. Our baby girl is gone.”

​Erin Oudshoorn’s 6-year-old daughter, Lulu, passed away. The little one was diagnosed with a rare epilepsy when she was just 11 months old.  ​Read More

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